A Guide to Exploring London as a Mum in a Wheelchair ♿

On 12th October 2018 we headed on the train from Manchester to London as a family for the National Muscular Dystrophy UK Conference, where I was appearing on a panel of incredible individuals – Lucy Watts MBE and Jamie Hale, to encourage others to (as the panel discussion title implies) – “Live the Life You Want.” Look out for a future blog on the MDUKConf18 After a long day speaking and mingling, we decided to make the most of our free evening before heading back home to a dreary Bolton, Manchester the following morning. Although blogging and guest speaking ventures have … Continue reading A Guide to Exploring London as a Mum in a Wheelchair ♿

I Risk My Life Everytime I Venture Out | #FitToBurst

Did the title grab your attention? No, it wasn’t clickbait. No, I’m not being dramatic and no, there isn’t another way out of this vicious cycle that I haven’t spent 14 years trying to make work to improve my situation. “ My name is Fi, I’m a 30 year old Mum of 2 little girls living in Bolton, Greater Manchester and I was born with an extremely rare, progressive muscle-wasting condition. I am totally dependant on a powerchair to mobilise, am completely non-ambulatory (unable to walk) and need help with most aspects of daily life. Including toileting. “ Maybe that … Continue reading I Risk My Life Everytime I Venture Out | #FitToBurst

Physio After 18 | The Neuromuscular Centre Part II

This post is part of a mini-series that focuses on Physiotherapy for individuals with muscle-wasting condition, transitioning from children’s to adults services at age 18. I recommend you read *Part I* to gain a better insight to this topic. I left off in Part I briefly touching on the light at the end of the tunnel for many in the North of England and that is The Neuromuscular Centre!   The Neuromuscular Centre is a non-profit organisation based in Winsford, Cheshire that provides a centre of excellence in Physiotherapy for young people aging out of the system with all sorts … Continue reading Physio After 18 | The Neuromuscular Centre Part II

Physio After 18 | Incurable muscle-wasting conditions ¦ Part I

Here in the UK on the NHS, physiotherapy for untreatable, progressive muscle-wasting conditions stop once you reach age 18. The way it was told to my parents was that the NHS could no longer justify the cost of weekly/bi-weekly therapy that would never better the young persons ultimately incurable condition, despite if the individual or their family felt it has benefits (and in some cases prevents other issues related to being non-ambulatory). Before I proceed I’m going to list some benefits of physio for people with muscle-wasting conditions so you can gauge the seriousness of stopping such therapy. 1. It … Continue reading Physio After 18 | Incurable muscle-wasting conditions ¦ Part I

Reception Round-Up | As a Disabled Parent w/ a SEND Child

It seemed like only yesterday I was doing a trial school run to find the best route in my powerchair, when we met Abbigail’s wonderful teachers and this photo was taken of us at a parents Stay and Play session mid-way through the school year. Abbie looks so grown up now compared to this image just 6 months ago. How could her first year of Primary School just flash by before my eyes? It was very much mixed emotions picking her up for the last time from the reception playground, a plastic bag in her hand crammed with all the … Continue reading Reception Round-Up | As a Disabled Parent w/ a SEND Child

The Sunshine Blogger Award

Thank you to Holly for nominating me for The Sunshine Blogger Award, an award I didn’t even know existed until I was tagged by the lovely blogger of ‘Life Of A Blind Girl.’ Such a wonderful idea to help readers better get to know you and support your friends! 1. What’s your favourite thing about blogging? Tacking diverse topics that I’m really passionate about. Creating awareness like when I decided not to feel ashamed anymore about that fact I experienced domestic abuse in a past relationship, somehow finding the courage to talk about it finally, instead of it being this … Continue reading The Sunshine Blogger Award

Keeping The Littles Cool During Heatwaves

Here in England, our summer usually consists of a max of 2 weeks of somewhat sunny weather, whilst the rest of the year its almost always raining and miserable. Suddenly for the past 3 months solid, according to the Express, we’re experiencing the hottest and longest heatwave since 1976! To begin with it was a welcome change from our usual dreary climate, we put the parka coats in the cupboard and everyone hit Primark to stock up as if they were off to Ibiza on their holidays. We had some lovely days out with the littles, family BBQs, walks around … Continue reading Keeping The Littles Cool During Heatwaves